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Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery, by Karyn Seroussi
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From Publishers Weekly
What can be more devastating for parents than to learn that their child is autistic? The severely debilitating neurological disorder, which affects social and language development, can be difficult to treat. When her son was diagnosed with autism at 19 months, Seroussi, a small-business owner and wife of a research chemist, determined to do everything in her power to help her child achieve normal functioning. In addition to pursuing recommended speech and behavior modification therapies for her son, Seroussi devoted her considerable energies--often against medical advice--to researching alternative approaches. Her own experience and a growing body of scientific evidence pointed to connections between autism and diet. And though the theory has not yet been proven, Seroussi says, research now suggests that autism may be an autoimmune disorder triggered in rare cases by an infant's measles-mumps-rubella immunizations. Convinced that the inability to digest certain proteins was contributing to her son's condition and that his autism was related to his reaction to MMR vaccines, Seroussi eliminated suspect foods from his diet; he made such dramatic improvement that, by age four, he was functioning normally. Now a crusader for dietary intervention, Seroussi has written a book that will give hope to many families--though she cautions that not every autistic child responds to such treatment. She includes a FAQ section, gluten- and casein-free recipes and resources, and a list of organizations and readings. Agent, Kathi Paton. (Feb.) FYI: Seroussi is co-founder of ANDI (the Autism Network for Dietary Intervention) and co-editor of the ANDI News. Copyright 1999 Reed Business Information, Inc.
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Review
Lisa S. Lewis, Ph.D. author of Special Diets for Special Kids Karyn Seroussi's good sense and her ability to sort out fact from fiction make her the perfect person to tell the story of autism research. Add to that a son who got better and a scientist husband who helped figure out why. -- Review
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Product details
Hardcover: 288 pages
Publisher: Simon & Schuster; 1 edition (February 17, 2000)
Language: English
ISBN-10: 0684831643
ISBN-13: 978-0684831640
Product Dimensions:
5.8 x 1 x 8.6 inches
Shipping Weight: 1 pounds
Average Customer Review:
4.3 out of 5 stars
90 customer reviews
Amazon Best Sellers Rank:
#516,488 in Books (See Top 100 in Books)
PRO: The author writes extremely well and the narrative of her son's early diagnosis of autism and his eventual recovery through diet (GFCF) and therapy is a compelling read and offers hope for any parent with an autistic child. KS is a "warrior" mom who devoted her life to her son's recovery and the happy ending is well deserved.CON: The book is old (~10 years) and the science has moved on. Unfortunately, she refers to the infamous (now mostly debunked) vaccine-autism link. I'm no doctor/scientist but I read a lot about autism. It now seems there's 0 link between autism/celiac but there is likely some link between gluten-sensitivity and a subset of autism cases (it's likely there are several types of autism with different causes). So a GFCF diet may help some children (especially if they have GI issues) but most will probably not be helped. I'd recommend DR. Sears' "Autism Book" or Martha Herbert's "Autism Revolution" instead for a more up-to-date look at alternative treatments.Unfortunately, because much of the narrative is about her son's early development and her thoughts at the time- this book can't really be revised to update the science.
Hi I bought this as i have a daughter who is 3 with autism.I loved her tenacity in the book and admire her fight for her son.However it is mainly about diet.Other biomed is not discussed too much in the book.It is still a great story and very helpful info on diet.Also some great info about her experience with some of the great autism doctors and researchers.Overall it sorda reminded me of louder than words by Jenny McCarthy,but Jenny talks much more about all Biomed treatments.Im very happy her son recovered through diet and ABA but our journey has been a little tougher.We also implement the GFCF diet and low sugar but we also have done an array of other things all Moms on the biomed journey are familiar with.I know alot of people can be put off by her "parents who dont try GFCF are bad".It is a ch allege to say the least but the results are amazing.My daughter is much more with it.More in our world so to speak.I believe autism is some form of the immune system issue attacking itself.While autism can come from many ways.Yes vaccines are one of them.At least my babys was.Its very complex.Its just like a puzzle as they say.Your child may have a severe allergy that has taken them into autism.I find it helpful to look at your family history as she did.Its almost like detective work and last but not least DONT GIVE UP!!!!
I believe any parent with a child diagnosed with Autism, ASD, PDD, allergies and bowel disease should invest their time and money in reading this book. Reading this book validated what I had suspected with my child. Karyn Seroussi filled in the blanks. I feel empowered. Yes, it is difficult to accept her suggestions to a restricted diet for some. It is selfish to not at least try the diet because it is inconvenient.I have been preparing special meals for my daughter since she was able to eat solid foods because she has severe food allergies to milk, soy, all nuts and eggs. My pediatrician took it even further and tested for food sensitivities (IgG; Elisa testing) and discovered a list of food intolerances. Same ped checked her titers for MMR and discovered they were through the roof. My baby's system was overloaded with vaccines. I was fortunate to have an open-minded pediatrician on my daughter's side. She has been on a specialized diet removing the additional 23 harmful foods (IgG) for one year now and she has improved tremendously. Especially removing the apples and tomatoes from her diet. However, it wasn't until reading this book did I understand the reason for her improvement. I even took it further and removed the last phenol from her diet.....BANANAS. She no longer has hours of inconsolable crying. Her GI physician wanted to put her on Prevacid and all along it was bananas. Needless to say I didn't start her on Prevacid. She recently started Nystatin and after the initial die-off of yeast, the haze has lifted. For the first time since she was 3 months old, she's now 5 years old, she laughed when we tickled her. I didn't understand the effect of yeast until reading this book. At least I was already on the right path. MOM'S KNOW........This is a wonderfully written story of ups, downs and eventually ups. It will not be the answer to everyone's situation. Although I highly recommend reading the book if only to better understand and answer your own questions.~ From a parent of a non-Autistic child but instead with a child with diagnosed with PDD, LGS, asthma and severe food allergies.
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